To Hayley Okines, a wonderful young lady who passed away this week of Hutchinson Gilford Progeria Syndrome, a disease that causes premature aging.
Miss Okines was seventeen years old and had the effective age of 104.
Obscure illnesses like Progeria are difficult not only for what they do to the patient, but because others do not understand the disease and its challenges, and little constituency to push for treatments.
A smile on the face and hope for a sunny day. More than that is a blessing. 🙂
